Autism Spectrum Disorder (ASD) is gaining increased attention in South Sudan as health experts and disability advocates call for early screening, greater public awareness, and improved access to services for affected children and adults.
With limited information and persistent stigma in many communities, specialists warn that delayed diagnosis continues to hinder the development and wellbeing of individuals with autism.
Autism, experts emphasize, is not a disease but a neurodevelopmental condition that affects communication, social interaction, and behavior in varying degrees.
Global researchers note that while its exact cause remains unknown, factors such as genetics, early brain development differences, and certain environmental influences may contribute.
They further stress that autism is not caused by poor parenting or vaccines claims disproven by decades of scientific research.
Early signs of autism often appear during the first three years of life. These may include delayed speech, limited eye contact, repetitive movements, and challenges in engaging socially with others.
Development specialists say early detection is crucial, as children who receive timely interventions tend to show significant improvement in communication, learning, and social skills.
In South Sudan, awareness is slowly rising thanks to advocates like disability rights campaigner Yar Makuei, who has consistently urged families to seek early assessment and avoid stigma.
She says cultural beliefs and misinformation continue to delay diagnosis, leaving many children without the help they need.
“Autism is not a curse or a family burden,” Makuei explains. “It is a condition that requires understanding, support, and proper services.”
Experts note that while there is no cure for autism, evidence-based interventions including behavioral therapy, speech and language therapy, and occupational therapy can greatly improve a child’s development.
Some individuals may also receive medication to manage symptoms like anxiety, hyperactivity, or sleep difficulties, though therapy remains the cornerstone of support.
However, access to autism-related services remains extremely limited across South Sudan. Parents often struggle to find trained professionals, and stigma continues to discourage families from seeking help.
Advocates are calling for stronger government engagement, increased training for health workers, and public information campaigns to improve understanding.
As conversations grow louder, health specialists and activists agree that early intervention and supportive communities can help children with autism reach their full potential and live meaningful, fulfilling lives.
